The number of members varies slightly over years but currently we have 7 corporate members and 10 individuals.
Current chair is dr. Brane Leskosek, EE, he is long term involved in bio(medical)informatics in academic environment as senior researcher, PI of many, especially EU, projects and as teacher at the University of Ljubljana, Faculty of Medicine and other healthcare related schools. Currently he is mostly occupied in setting up national research infrastructure for life-science information as a part of European distributed research infrastructure ELIXIR. A major part of this research infrastructure is data management through establishment of national node of federated european genome-phenome archive that will accept research as well as clinical data in a standard formats following the FAIR principles. He is also national scientific representative in the EU declaration of 1 Million Genomes by 2022.
Bibliography, see https://bib.cobiss.net/biblioweb/biblio/si/eng/cris/15355
The goal of HL7 Slovenia is promotion and the establishment of reliable and practically useful national health information standards (normative documents, regulations, recommendations, etc.) for the exchange, management and integration of data that support the treatment of patients and provision of other healthcare services. HL7 Slovenia helps to establish flexible and cost-effective conditions, standards, guidelines, methodologies and similar services that bring interoperability, localization, compatibility and effectiveness of health information systems and electronic health records (EHRs).
The goal of HL7 Slovenia is to provide a reference point for dissemination of health information standards in Slovenia in accordance with the rules and restrictions defined by HL7 International.
The goal of HL7 Slovenia is also to connect all the stakeholders in the standardization of health information systems (particularly in the area of the HL7 standards), and by this to coordinate the development of content, the quest for quality and modern ways of work in design, deployment and training in the field of health information standards.
Major technical activity of the HL7 Slovenia affiliate is to rise the awareness and importance of medical informatics standards in clinical environment and help setting up common national guidelines and regulations for clinical/medical information systems and EHRs in Slovenia that will allow effective electronic data interoperability and information exchange between them and possibly with other countries IS. In technical sense we closely collaborate with software vendors with the aim to allow equal access to patient data by any healthcare professional when needed in a safe and secure way and following the GDPR regulations. To fulfill these objectives, the HL7 Slovenia deals with the following tasks/working groups:
Clinical work in Slovenia is increasingly well-supported by the (clinical) information systems. Unfortunately, the information systems are rarely interconnected. They are seldom able to perform electronic data interchange and are mostly collecting only partially structured data. Relevant governmental organizations and ministries in Slovenia did not do much to set standards in the field of health and biomedical informatics, despite almost ten years of Slovenia's inclusion in the EU and in the European eHealth initiative. In several Western countries a substantial progress was made during this time just by setting national and obeying international standard IT solutions of healthcare that enable much better and outwardly unified operation of health information systems even if they are manufactured by various IT solution providers. The Management Board of the Slovenian Medical Informatics Association (SDMI) is aware of the need for the unified IT solutions and the importance of the nationally imposed health information standards, so it supported the creation of a non-governmental, voluntary, independent and non-profit section HL7 Slovenia, which will deal with the health informatics standardization and cooperate with the largest non-profit organization in the field of health information standards - HL7 International. In the next three years we would like to improve the use of HL7 data collection and interoperability standards in national medical informatics solutions and through that improve the quality of healthcare services for patients. HL7 interoperability standards should be used in all major hospitals and majority of community healthcare centres. Important role in reaching this goal is collaboration and knowledge exchange with regional HL7 affiliates and experts, also through HL7 Europe affiliate.
Aim is to start with organisation of bi-lateral regional community meetings and interoperability hackathons whether as f2f, hybrid or virtual events.
Established genome-phenome archives of research and clinical data and connect them with national healthcare backbone following also the HL7 recommendations and standards.